Rochester General Hospital
Ostomy Information
Here are some updates in products available from our ostomy suppliers:
- Convatec continues to offer the natura 2 piece appliance line with a few new improvements. Available now is a convex moldable durahesive wafer which attaches to the natura pouches. The wafers come in 3 different sizes: small, medium and large and can be molded to accommodate most stoma shapes and sizes. This is a no cut procedure and is simple to mold and fit the stoma.
- Convatec has launched a new line of appliance called esteem synergy which is very flexible and low profile. It has an advanced coupling system that actually "sticks" to the wafer flange creating the seal. The new invisclose pouch closure does not require a clip.
- Hollister now offers a variety of appliances to fit any life style. The new image line boasts the floating flange which is easy to attach the pouch without pressing on the abdomen. They continue to offer a extensive line of one and two piece appliances in both cut to fit and pre-cut. The pouches are made of a soft fabric outer layer which has been reported to be very comfortable and doesn't stick to the skin.
- Both companies have toll free numbers staffed by a WOCN for questions about new products or if the ostomate has questions or problems with skin care or the stoma. Hollister contact is 1-888-808-7456, Convatec contact is 1-800-422-8811
With the dissolution of UOA many people are wondering what's available to new ostomates for information and support. UOAA, Inc. (United Ostomy Association of America, Inc.) is available and is expanding its local chapters. Information can be obtained by calling the toll free number 1-800-826¬0826. They also have a web site www.uoaa.org. It is a non-profit organization in New Jersey. To assist with funding, a quarterly magazine called The Pheonix is available for purchase and is recommended as a resource for patients. The UOAA web is a wealth of knowledge and an excellent source of information for people of all ages with all types of diversions.
Frequently asked questions:
Will I be able to resume my normal activities that I used to be able to do?
An ostomy should not restrict your daily activities. Participation in most sports is not limited. Some physicians do not allow contact sports for fear of injury to the stoma, but this is not absolute. Discuss your concerns with your physician to see what is best for you. Many people participate in running, swimming and skiing without difficulty.
Will I be able to wear the same clothes?
The only restriction in clothing is your comfort. You may need to adjust a few items to prevent pressure directly on the stoma itself. Cotton knit or stretch underpants or panty hose may give support needed to provide a smoother profile. Men may prefer to wear jockey type shorts to help support the pouch. Swim wear with a lining may help smooth out any bulges or outlines. A 2 piece tankini may also provide better coverage. Men may want to wear a T shirt if the stoma is above the belt line.
What about sex and intimacy?
Sexual relationships are an important part of life. Your attitude towards intimacy and open communication is key to re-establishing a sexual relationship. A period of adjustment is expected after surgery. Problems with sexual function should be discussed with your physician.
What if I want to travel?
All methods of travel are open to you. Most important is to assure you have enough supplies with you. It is recommended you bring double the supplies you think you will need. This will assure you have enough supplies in the event of an illness. Make sure you bring medications and supplies to control diarrhea if needed. If traveling by plane, make sure you have supplies to carry on the plane as well as checked luggage in the event you get stranded in an airport or if your luggage gets lost. Scissors are prohibited with a cutting edge longer than 4 inches for carry on and pack your scissors in your checked luggage. It is also advised to have a statement from your physician stating your need ostomy supplies and advocating a private area for an extended search. For more information regarding travel tips see the uoaa web site ostomy travel tips. There is also a book "Yes We Can" which has many helpful hints for those who travel abroad.
For more information about local support contact your WOCN or physician.
Remember, your ostomy should be a part of your life - not the focus of your every day. In the beginning, after your surgery, there is a necessary period of adjustment to the new way your body looks and functions. As you become used to your stoma and adept at ostomy care, you should be able to gradually get back to doing all the things you enjoyed prior to your surgery. However, if your appliance or wafer needs to be changed more often than every four days or does not allow you to rest/sleep without "an accident" or the skin around your skin is reddened/irritated for more than two appliance/wafer changes, you should contact your ET nurse for a check-up appointment There is an appliance for every ostomy patient that will allow peace of mind. Sometimes, it takes a few trials to find the right one for you but... it is there! Don’t give up!
Local News:
Genesee Valley United Ostomy Association meets once a month and is a wonderful support group for persons with ostomies. Families and friends are also welcome to attend the monthly meetings, usually held at Cancer Action on Alexander Street across from Alexander Park. Please call Pat Fitzpatrick at 423-9700 for more information.
For Further Questions or Concerns:
Enterostomal Nurse
Rochester General Hospital
1425 Portland Avenue
Rochester, New York 14621
(585) 922-4000
