Ewing sarcoma is a rare type of cancer. It’s most common in children and teens between the ages 10 and 19. It usually grows in bone, but it can also grow in soft tissue that’s connected to the bone. This may include tendons, ligaments, cartilage, or muscles.
Ewing sarcoma most often grows in:
Symptoms can occur a bit differently in each child. They can include:
The symptoms of Ewing sarcoma can be like other health conditions. Make sure your child sees a healthcare provider for a diagnosis.
Your child's healthcare provider will ask about your child's health history and symptoms. He or she will examine your child. Your child may be referred to a specialist. This may be a bone specialist (orthopedic surgeon) or a bone cancer specialist (orthopedic oncologist). Your child may have tests such as:
Part of diagnosing cancer is called staging. Staging checks the size and location of the main tumor, if it has spread, and where it has spread. Ewing sarcoma may be stage 1, 2, or 3 with sub-stages. Talk with your child's oncologist about your child's stage and what it means. Staging also helps to decide the treatment.
Treatment will depend on the stage and other factors. The cancer can be treated with any of the below:
With any cancer, how well a child is expected to recover (prognosis) varies. Keep in mind:
A child may have complications from the sarcoma or from treatment, such as:
A child with a Ewing sarcoma needs ongoing care. Your child will be seen by oncologists and other healthcare providers to treat any late effects of treatment and to watch for signs or symptoms of the tumor returning. Your child will be checked with imaging tests and other tests. And your child may see other healthcare providers for problems from the tumor or from treatment. Your child may need therapy to help with movement and muscle strength. This may be done by physical and occupational therapists.
You can help your child manage his or her treatment in many ways. For example:
Call the healthcare provider if your child has: